Australasia’s Feeding Tube Awareness Week #FTAW2025 is celebrated nationally from 2-8 February 2025.  FTAW aims to raise awareness about tube feeding and unite the community. 

https://blog.cirm.ca.gov/2025/03/11/breaking-barriers-in-rare-disease-a-gene-therapy-transforms-cystinosis-treatment/?fbclid=IwZXh0bgNhZW0CMTEAAR1f2iMPF-5wFuiZ8wCpPuhUuf7zLV6YMj8IsPSFiAXufzKO-IBdsuNokhw_aem_GQWXMpTV8eYttvKdR13VfQ

Rebates/Concessions across Australia NSW The Life Support Energy Rebate The Life Support Energy Rebate helps eligible NSW households cover the costs of their energy bills.The

Tomorrow marks Rare Disease Day and what better way to get started than by sharing Trudy’s story. More than 300 million people worldwide live with

Feeding Tube Awareness Week was held 5-11 February 2023.  To help support #FTAW2023 we put together a list of books dedicated to children who may require a

“Completing the dosing of the first and only gene therapy trial for cystinosis represents a major milestone for a patient community living with a devastating