
Feeding Tube Awareness Week
Feeding Tube Awareness Week was held 5-11 February 2023. To help support #FTAW2023 we put together a list of books dedicated to children who may require a

Feeding Tube Awareness Week was held 5-11 February 2023. To help support #FTAW2023 we put together a list of books dedicated to children who may require a

“Completing the dosing of the first and only gene therapy trial for cystinosis represents a major milestone for a patient community living with a devastating

Currently, only one treatment exists for children affected by cystinosis – a medication called cysteamine. Unfortunately, cysteamine comes with a challenging treatment schedule. Children are

Feeding Tube Awareness Week (5-11 February 2023) is about bringing everyone together who has a feeding tube, whatever the reason may be. We’ve partnered with

The Australian Cystinosis Foundation acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respects to them and their cultures and elders past, present and emerging.
