Cystagon Supply Update – Australian Cystinosis Community
An update for the Australian Cystinosis community regarding Cystagon® (mercaptamine / cysteamine bitartrate) 150 mg capsules, following a shortage notification issued by the Therapeutic Goods
An update for the Australian Cystinosis community regarding Cystagon® (mercaptamine / cysteamine bitartrate) 150 mg capsules, following a shortage notification issued by the Therapeutic Goods
Today marks the beginning of Feeding Tube Awareness Week , and it is an honour and a privilege to share Todd’s story and his words on what
Australasia’s Feeding Tube Awareness Week #FTAW2025 is celebrated nationally from 2-8 February 2025. FTAW aims to raise awareness about tube feeding and unite the community.
https://blog.cirm.ca.gov/2025/03/11/breaking-barriers-in-rare-disease-a-gene-therapy-transforms-cystinosis-treatment/?fbclid=IwZXh0bgNhZW0CMTEAAR1f2iMPF-5wFuiZ8wCpPuhUuf7zLV6YMj8IsPSFiAXufzKO-IBdsuNokhw_aem_GQWXMpTV8eYttvKdR13VfQ
Rebates/Concessions across Australia NSW The Life Support Energy Rebate The Life Support Energy Rebate helps eligible NSW households cover the costs of their energy bills.The
Tomorrow marks Rare Disease Day and what better way to get started than by sharing Trudy’s story. More than 300 million people worldwide live with
The Australian Cystinosis Foundation acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respects to them and their cultures and elders past, present and emerging.
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