Rare Disease Day

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Tomorrow marks Rare Disease Day and what better way to get started than by sharing Trudy’s story.

More than 300 million people worldwide live with a rare disease—and Trudy is one of those people.

Trudy was just 11 months old when she was diagnosed with Cystinosis. Today at 41 looks back on her incredible journey, even representing Australia at the World Transplant Games! It’s a testament to Trudy as to how far she has come, living as fully as she can whilst also encountering the many issues and challenges that come with Cystinosis.

By sharing Trudy’s story, we hope to benefit those who share a similar experience and raise awareness and advocate for change for those living with a rare disease here in Australia, New Zealand, and around the world!