“Completing the dosing of the first and only gene therapy trial for cystinosis represents a major milestone for a patient community living with a devastating
Currently, only one treatment exists for children affected by cystinosis – a medication called cysteamine. Unfortunately, cysteamine comes with a challenging treatment schedule. Children are
Feeding Tube Awareness Week (5-11 February 2023) is about bringing everyone together who has a feeding tube, whatever the reason may be. We’ve partnered with
The Australian Cystinosis Foundation acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respects to them and their cultures and elders past, present and emerging.
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