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Understanding Cystinosis

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Rare Disease Day

Tomorrow marks Rare Disease Day and what better way to get started than by sharing Trudy’s story. More than 300 million people worldwide live with a

Feeding Tube Awareness Week

Feeding Tube Awareness Week was held 5-11 February 2023.  To help support #FTAW2023 we put together a list of books dedicated to children who may require a tube

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