The Australian Cystinosis Foundation

Help for a better tomorrow

Empowering patients and families through education, community building, advocacy and support of research.

Awareness

Support

Research

Understanding Cystinosis

Join us in making an impact among those living with Cystinosis

Latest News, Blog Posts and More

Medical and life support rebates across Australia

Rebates/Concessions across Australia NSW The Life Support Energy Rebate The Life Support Energy Rebate helps eligible NSW households cover the costs of their energy bills.The rebate

Rare Disease Day

Tomorrow marks Rare Disease Day and what better way to get started than by sharing Trudy’s story. More than 300 million people worldwide live with a

Feeding Tube Awareness Week

Feeding Tube Awareness Week was held 5-11 February 2023. To help support #FTAW2023 we put together a list of books dedicated to children who may require a tube

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Acknowledgement of Country

The Australian Cystinosis Foundation acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respects to them and their cultures and elders past, present and emerging.

The Australian Cystinosis Foundation is an independent not-for-profit registered charity dedicated to helping Australian patients with Cystinosis and their families. Through support, education, patient services and collaboration with medical professionals.