The Australian Cystinosis Foundation

Help for a better tomorrow

Empowering patients and families through education, community building, advocacy and support of research.

Awareness

Support

Research

Understanding Cystinosis

Join us in making an impact among those living with Cystinosis

Latest News, Blog Posts and More

Feeding Tube Awareness Week

Australasia’s Feeding Tube Awareness Week #FTAW2025 is celebrated nationally from 2-8 February 2025. FTAW aims to raise awareness about tube feeding and unite the community. Cystinosis

Breaking barriers in rare disease: A gene therapy transforms cystinosis treatment

https://blog.cirm.ca.gov/2025/03/11/breaking-barriers-in-rare-disease-a-gene-therapy-transforms-cystinosis-treatment/?fbclid=IwZXh0bgNhZW0CMTEAAR1f2iMPF-5wFuiZ8wCpPuhUuf7zLV6YMj8IsPSFiAXufzKO-IBdsuNokhw_aem_GQWXMpTV8eYttvKdR13VfQ

Medical and life support rebates across Australia

Rebates/Concessions across Australia NSW The Life Support Energy Rebate The Life Support Energy Rebate helps eligible NSW households cover the costs of their energy bills.The rebate

Get in Touch, Get Involved

Acknowledgement of Country

The Australian Cystinosis Foundation acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respects to them and their cultures and elders past, present and emerging.

The Australian Cystinosis Foundation is an independent not-for-profit registered charity dedicated to helping Australian patients with Cystinosis and their families. Through support, education, patient services and collaboration with medical professionals.